Skip to content

Commit

Permalink
Merge pull request #53 from NBISweden/feature/terms_of_use_and_link_t…
Browse files Browse the repository at this point in the history 
…o_data_file

Feature/terms of use and link to data file
  • Loading branch information
@viklund
viklund authored Oct 18, 2016
2 parents f9e3b8e + 581d8d6 commit 94e4162
Show file tree
Hide file tree
Showing 2 changed files with 141 additions and 17 deletions.
70 changes: 70 additions & 0 deletions terms_of_use.txt
View file
Original file line number Diff line number Diff line change
@@ -0,0 +1,70 @@
########################################################################
##
## Terms of use for the SweGen dataset (release 20161019)
##
########################################################################

All data in the SweGen dataset are human allele frequencies estimated
from aggregates across large sample groups, rendering contributing
individuals non-identifiable. The method used for estimating the
frequencies is described in the corresponding publication. Data is
versioned and frequencies in different data versions may be different.
No individual level genetic data is contained in this dataset. We
encourage the use and publication of frequency data for specific
targeted sets of variants (for instance, assessing a set of candidate
causal variants observed in a collection of rare disease patients).

By accessing the data you agree to the following terms and conditions,
irrespective of the method used to retrieve the data (for example vcf
file download or variant query through Beacon or other methods):

1. You are allowed to freely search the data at the SweFreq website,
and download any files containing allele frequency data made
available on this site after registration.

2. The data may not be used to attempt to identify any individual in
this or other studies.

3. No global analysis of the data may be published before the SweGen
project's own upcoming publication, estimated early 2017. A notice
will appear on https://swefreq.nbis.se stating when new global
analyses may be published.

4. Any published study that includes processing of the data
shall include the data version used, acknowledge the original
study with the sentence "The SweGen allele frequency data was
generated by Science for Life Laboratory", and cite the following
publication: SweGen: A whole-genome map of genetic variability in
a cross-section of the Swedish population. Ameur et al., bioRxiv
081505; (doi:10.1101/081505)

5. The data may be redistributed in original or modified form, but must
always be distributed together with the file "terms_of_use.txt"
that is stored together with the data and available here
[https://swefreq.nbis.se/#/downloadData/], and any redistributed
data derived from the SweGen data set must follow those terms and
conditions.

########################################################################
##
## Disclamer
##
########################################################################

This dataset is based on individuals from population-based
cross-sectional studies. No phenotype information has been used as
inclusion criteria in the dataset. Individuals with common diseases
occur at the general population prevalence of the disease. As a
consequence, genetic variants contributing to disease risk occur in
the dataset at the general population frequency. There is no explicit
or implicit guarantee that the genetic variants in the dataset do not
contribute to risk of disease.

########################################################################
##
## Citation in publications
##
########################################################################

Any use of SweGen data should be cited by our preprint on bioRxiv
[http://biorxiv.org/content/early/2016/10/17/081505]
88 changes: 71 additions & 17 deletions tornado/static/downloadData.html
View file
Original file line number Diff line number Diff line change
Expand Up @@ -6,28 +6,82 @@
<div class="col-xs-1"></div>
<div class="col-xs-8">
<h2>SweFreq Agreement</h2>
<h3>Terms of use</h3>
<h3>Terms of use for the SweGen dataset (release 20161019)</h3>

<p>You are allowed to freely search the data available at this site, and files with genome-wide variant frequencies
are available for academic use upon registration. The variant frequency files, or modified versions of the files, may
not be redistributed to other users. Each user is required to register in the system and download his/her own copy
from this central site and it responsible that this information is not distributed to others. We encourage the use
and publication of frequency data for specific targeted sets of variants (for instance, assessing a set of candidate
causal variants observed in a collection of rare disease patients). However, you are not allowed to publish global
(genome-wide) analyses of the complete data set or large gene sets, until after the first SweGen paper, describing
the resource, has been published in a peer-reviewed journal (estimated to be in early 2017).
<!-- Apart from the links and markup, VERBATIM OF TERMS AND AGREEMENT
IN THE FILE terms_of_use.txt IN TOP-LEVEL OF REPO -->

<p>
All data in the SweGen dataset are human allele frequencies estimated
from aggregates across large sample groups, rendering contributing
individuals non-identifiable. The method used for estimating the
frequencies is described in the corresponding publication. Data is
versioned and frequencies in different data versions may be different.
No individual level genetic data is contained in this dataset. We
encourage the use and publication of frequency data for specific
targeted sets of variants (for instance, assessing a set of candidate
causal variants observed in a collection of rare disease patients).
</p>
<p>
By accessing the data you agree to the following terms and conditions,
irrespective of the method used to retrieve the data (for example vcf
file download or variant query through Beacon or other methods):
</p>
<ol>
<li>
You are allowed to freely search the data at the SweFreq website,
and download any files containing allele frequency data made
available on this site after registration.
</li>
<li>
The data may not be used to attempt to identify any individual in
this or other studies.
</li>
<li>
No global analysis of the data may be published before the SweGen
project's own upcoming publication, estimated early 2017. A notice
will appear on <a href="https://swefreq.nbis.se">https://swefreq.nbis.se</a> stating when new global
analyses may be published.
</li>
<li>
Any published study that includes processing of the data
shall include the data version used, acknowledge the original
study with the sentence "The SweGen allele frequency data was
generated by Science for Life Laboratory", and cite the following
publication: SweGen: A whole-genome map of genetic variability in
a cross-section of the Swedish population. Ameur et al., bioRxiv
081505; (doi:10.1101/081505)
</li>
<li>
The data may be redistributed in original or modified form, but must
always be distributed together with the file "terms_of_use.txt"
that is stored together with the data and available here
[<a href="https://swefreq.nbis.se/#/downloadData/">https://swefreq.nbis.se/#/downloadData/</a>], and any redistributed
data derived from the SweGen data set must follow those terms and
conditions.
</li>
</ol>

<h3>Disclaimer</h3>

<p>This database is based on individuals from population-based cross-sectional studies. No phenotype information has
been used as inclusion criteria in the database. Individuals with common diseases occur at the general population
prevalence of the disease. As a consequence, genetic variants contributing to disease risk occur in the database at
the general population frequency. There is no explicit or implicit guarantee that the genetic variants in the
database do not contribute to risk of disease.
<p>
This dataset is based on individuals from population-based
cross-sectional studies. No phenotype information has been used as
inclusion criteria in the dataset. Individuals with common diseases
occur at the general population prevalence of the disease. As a
consequence, genetic variants contributing to disease risk occur in
the dataset at the general population frequency. There is no explicit
or implicit guarantee that the genetic variants in the dataset do not
contribute to risk of disease.
</p>

<h3>Citation in publications</h3>

<p>Any use of SweGen data should be cited by <a href="http://somewhere.some.place/">our preprint on bioRxiv</a>.
<p>
Any use of SweGen data should be cited by our preprint on bioRxiv
[<a href="http://biorxiv.org/content/early/2016/10/17/081505">http://biorxiv.org/content/early/2016/10/17/081505</a>]
</p>


<p><b>I hereby consent to the agreement:</b> <input type="checkbox"
ng-model="downloadDataCtrl.checked"
Expand All @@ -36,8 +90,8 @@ <h3>Citation in publications</h3>

<a class="btn btn-primary btn-download"
ng-class="{'disabled': downloadDataCtrl.lChecked}"
download="swefreq.tar"
href="/static/swefreq.tar"
download="swegen_20161019.tar"
href="/static/swegen_20161019.tar"
ng-click="downloadDataCtrl.downloadData()">Download</a>

</div>
Expand Down

0 comments on commit 94e4162

Please sign in to comment.