Information from Andrea Hollen:
- Chapin Hall’s classic post on longitudinal data (and entry cohort thinking): https://fcda.chapinhall.org/permanency/what-is-longitudinal-data-and-why-do-we-need-it/
- UC Berkeley has great material on the importance of longitudinal data in child welfare: http://cssr.berkeley.edu/ucb_childwelfare/ . I would argue that states should not have to ship their data out to research partners to organize it longitudinally and make it useful to operational decision making.
- SPEHR: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2854814/
- OpenEHR: https://openehr.org/
- NYC Population Health “Macroscope:” (useful model for human services) — https://www1.nyc.gov/site/doh/data/health-tools/nycmacroscope.page
- National Infromation Exchange Model (NIEM): as a set of templates for data exchange: https://www.niem.gov/