diff --git a/terms_of_use.txt b/terms_of_use.txt new file mode 100644 index 000000000..9a775099f --- /dev/null +++ b/terms_of_use.txt @@ -0,0 +1,70 @@ +######################################################################## +## +## Terms of use for the SweGen dataset (release 20161019) +## +######################################################################## + +All data in the SweGen dataset are human allele frequencies estimated +from aggregates across large sample groups, rendering contributing +individuals non-identifiable. The method used for estimating the +frequencies is described in the corresponding publication. Data is +versioned and frequencies in different data versions may be different. +No individual level genetic data is contained in this dataset. We +encourage the use and publication of frequency data for specific +targeted sets of variants (for instance, assessing a set of candidate +causal variants observed in a collection of rare disease patients). + +By accessing the data you agree to the following terms and conditions, +irrespective of the method used to retrieve the data (for example vcf +file download or variant query through Beacon or other methods): + +1. You are allowed to freely search the data at the SweFreq website, + and download any files containing allele frequency data made + available on this site after registration. + +2. The data may not be used to attempt to identify any individual in + this or other studies. + +3. No global analysis of the data may be published before the SweGen + project's own upcoming publication, estimated early 2017. A notice + will appear on https://swefreq.nbis.se stating when new global + analyses may be published. + +4. Any published study that includes processing of the data + shall include the data version used, acknowledge the original + study with the sentence "The SweGen allele frequency data was + generated by Science for Life Laboratory", and cite the following + publication: SweGen: A whole-genome map of genetic variability in + a cross-section of the Swedish population. Ameur et al., bioRxiv + 081505; (doi:10.1101/081505) + +5. The data may be redistributed in original or modified form, but must + always be distributed together with the file "terms_of_use.txt" + that is stored together with the data and available here + [https://swefreq.nbis.se/#/downloadData/], and any redistributed + data derived from the SweGen data set must follow those terms and + conditions. + +######################################################################## +## +## Disclamer +## +######################################################################## + +This dataset is based on individuals from population-based +cross-sectional studies. No phenotype information has been used as +inclusion criteria in the dataset. Individuals with common diseases +occur at the general population prevalence of the disease. As a +consequence, genetic variants contributing to disease risk occur in +the dataset at the general population frequency. There is no explicit +or implicit guarantee that the genetic variants in the dataset do not +contribute to risk of disease. + +######################################################################## +## +## Citation in publications +## +######################################################################## + +Any use of SweGen data should be cited by our preprint on bioRxiv +[http://biorxiv.org/content/early/2016/10/17/081505] diff --git a/tornado/static/downloadData.html b/tornado/static/downloadData.html index 6bc0e3eec..e5a056240 100644 --- a/tornado/static/downloadData.html +++ b/tornado/static/downloadData.html @@ -6,28 +6,82 @@

SweFreq Agreement

-

Terms of use

+

Terms of use for the SweGen dataset (release 20161019)

-

You are allowed to freely search the data available at this site, and files with genome-wide variant frequencies - are available for academic use upon registration. The variant frequency files, or modified versions of the files, may - not be redistributed to other users. Each user is required to register in the system and download his/her own copy - from this central site and it responsible that this information is not distributed to others. We encourage the use - and publication of frequency data for specific targeted sets of variants (for instance, assessing a set of candidate - causal variants observed in a collection of rare disease patients). However, you are not allowed to publish global - (genome-wide) analyses of the complete data set or large gene sets, until after the first SweGen paper, describing - the resource, has been published in a peer-reviewed journal (estimated to be in early 2017). + + +

+ All data in the SweGen dataset are human allele frequencies estimated + from aggregates across large sample groups, rendering contributing + individuals non-identifiable. The method used for estimating the + frequencies is described in the corresponding publication. Data is + versioned and frequencies in different data versions may be different. + No individual level genetic data is contained in this dataset. We + encourage the use and publication of frequency data for specific + targeted sets of variants (for instance, assessing a set of candidate + causal variants observed in a collection of rare disease patients). +

+

+ By accessing the data you agree to the following terms and conditions, + irrespective of the method used to retrieve the data (for example vcf + file download or variant query through Beacon or other methods): +

+
    +
  1. + You are allowed to freely search the data at the SweFreq website, + and download any files containing allele frequency data made + available on this site after registration. +
    2. +
  2. + The data may not be used to attempt to identify any individual in + this or other studies. +
    3. +
  3. + No global analysis of the data may be published before the SweGen + project's own upcoming publication, estimated early 2017. A notice + will appear on https://swefreq.nbis.se stating when new global + analyses may be published. +
    4. +
  4. + Any published study that includes processing of the data + shall include the data version used, acknowledge the original + study with the sentence "The SweGen allele frequency data was + generated by Science for Life Laboratory", and cite the following + publication: SweGen: A whole-genome map of genetic variability in + a cross-section of the Swedish population. Ameur et al., bioRxiv + 081505; (doi:10.1101/081505) +
    5. +
  5. + The data may be redistributed in original or modified form, but must + always be distributed together with the file "terms_of_use.txt" + that is stored together with the data and available here + [https://swefreq.nbis.se/#/downloadData/], and any redistributed + data derived from the SweGen data set must follow those terms and + conditions. +
    6. +

Disclaimer

-

This database is based on individuals from population-based cross-sectional studies. No phenotype information has - been used as inclusion criteria in the database. Individuals with common diseases occur at the general population - prevalence of the disease. As a consequence, genetic variants contributing to disease risk occur in the database at - the general population frequency. There is no explicit or implicit guarantee that the genetic variants in the - database do not contribute to risk of disease. +

+ This dataset is based on individuals from population-based + cross-sectional studies. No phenotype information has been used as + inclusion criteria in the dataset. Individuals with common diseases + occur at the general population prevalence of the disease. As a + consequence, genetic variants contributing to disease risk occur in + the dataset at the general population frequency. There is no explicit + or implicit guarantee that the genetic variants in the dataset do not + contribute to risk of disease. +

Citation in publications

-

Any use of SweGen data should be cited by our preprint on bioRxiv. +

+ Any use of SweGen data should be cited by our preprint on bioRxiv + [http://biorxiv.org/content/early/2016/10/17/081505] +

+

I hereby consent to the agreement: Citation in publications Download